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Page 2
Items
Focus groups/interviews n = qq49
Survey n = 99
X2or Mann-Whitney U test3
Aus.1n = 26
Chi. 2n = 23
Aus. 1n = 31
Chi.2n = 68
Male (%)
4 (15)
6 (26)
5 (16)
23 (34)
-
Female (%)
22 (85)
17 (74)
26 (84)
65 (66)
-
Spouses or partners (%)
20 (77)
13 (57)
23 (74)
31 (46)
-
Children or relatives (%)
6 (23)
10 (43)
8 (26)
37 (54)
-
Mean age (range)
69.0 (34-83)
68.0 (47-93)
68.3 (43-84)
60.5 (29-86)
P = 0.007
Mean duration in the caregiver role (range)
6.0 (2-17)
5.0 (1-16)
3.8 (1-13)
4.1 (1-14)
-
Attended dementia course (%)
22 (85)
0 (0)
27 (87)
0 (0)
-
Stay in the same house (%)
19 (73)
20 (87)
26 (84)
52 (77)
-
Hours spent on care per day4
-
-
14.2 (2-24)
19.5 (1-24)
P = 0.003
Perceived financial burden (%)4
-
-
14 (45)
53 (78)
P = 0.003
Perceived health states (SD)
-
-
2.9(0.9)
3.0 (0.7)
-
Mean numbers of family members assisting care (SD)
-
-
1.2 (1.4)
1.4 (1.3)
-
1Australian cohort; 2Chinese cohort; 3the tests were undertaken for survey data only; 4 Objective burden: Level 1 analyses in Giddens’ Structuration Theory Framework; see Additional file 2 that shows the integration of the objective burden into the findings.